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Jan. 21, 2010
Dr. Lucinda Bateman, an internist whose practice is dedicated to the management and care
of chronic fatigue syndrome (CFS) and fibromyalgia, walked through the basics of the
latest research linking XMRV (a human retrovirus) and CFS. She also shared some insights
into what this discovery might mean for the field and for patients, as well as her
perspective on other current research efforts.
Dr. Suzanne Vernon is the CFIDS Association's scientific director. She holds her doctorate
in virology from the University of Wisconsin and had 17 years experience in public health
research on infectious diseases before joining the Association's staff in 2007 to lead its
research program. Dr. Vernon moderated the program.
The CFIDS Association of America had planned to feature a video record of the event on
their website, however they encountered technical difficulties. The presentation slides
can be viewed at
http://www.cfids.org/webinar/xmrv-slides-jan2010.pdf (PDF Format). A participant
recorded the program and it is now available at
http://www.youtube.com/solvecfs#p/f. Also, Dr. Bateman has agreed to present an
updated program on the same topic when she has additional news and data to share.
Closing her presentation with a positive "Worst Case Scenario," Dr. Bateman suggests:
"Even if we eventually determine that XMRV only infects a small subset of CFS patients,
and/or that it is not the primary, but rather a secondary infection, at very least… This
important breakthrough has succeeded in bringing international attention to CFS in the
research, medical and pharma communities, and to policy makers. Our job is to help sustain
this interest!"
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