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Get Treatment
Depression, pain and sleep deprivation can influence your ability to concentrate and remember. Getting your medical problems treated may indirectly help your memory. |
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Reach Out And Touch Someone
It can be all too easy for bed-bound people with FM and CFS/ME to feel cut off from the world and even the rest of their household. One way to keep in contact with family members in other parts of the house is to use Walkie talkies or a baby monitor. To keep in touch with the outside world there's always the Internet. There are a number of online communities set up for people with FM and CFS/ME. If you're interests fall along the lines of gaming there are always cards or board games for the Internet. |
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Keep Hope Alive
There is so much room for hope. It has only been since the 1990's that our condition has acquired any legitimacy from the medical community. We are in a far better position than the generations before us who suffered without ever receiving validation. We know much more about the important roles of exercise, medication, stretching, pacing and meditation to bring relief and a sense of control. Furthermore, as medical research increases, it is only a matter of time before better therapies (and perhaps even a cure!) are introduced. One way to help speed up research into a cure is to take the FM/CFS/ME Survey. Information is now being collected from FM and CFS/ME patients worldwide. This survey will end when FM and CFS/ME are no longer a threat to society. We have posted the current results to keep you up to date on our effort. Be sure to check our Survey Results section. All information is kept strictly confidential. E-mail addresses, names and other personal information are kept safe from outside sources and are never used, sold, or given away to other parties. |
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Shopping
For people in wheelchairs or for those who use walkers, shopping brings on a whole new set of problems. Department stores jam clothing racks so close together it's impossible to get near the clothes. And grocery stores never seem to have the items you need within your reach. One simple approach to solving the shopping problem is to shop online. Many fine stores are now online and offer next day shipping if you're in a hurry. I buy most of my clothing this way as it's impossible for me to get around in department stores. My favorite stores are Lane Bryant, Blair, and Wal-Mart. To simplify your grocery dilemma, many grocery stores now have delivery service. Check your local grocery stores to see if they offer this service. Having your groceries delivered saves you a lot of time and energy. If they don't offer this service, take someone with you. They'll be able to reach the items you can't, and help to carry your bags. Another idea for grocery shopping is to use a motorized cart. Even if you aren't in a wheelchair normally, taking advantage of this option can save you pain and agony later. If you decide not to use a motorized cart, be sure to take breaks. Many grocery stores now have a luncheon area where you can sit down and have coffee and a snack. This will give you a chance to rest until you get your strength back. Remember, if you're too tired when you get home to put away your groceries, just put away the perishables. (meats and refrigerated items) You can always and leave the rest of the items until you've regained your strength. Unless you have a great husband or kids, trust me, they'll still be there! |
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Showering or Bathing
Showering is a major task for those of us with a chronic illness. It ranks right up there on the energy scale with home renovation, plowing the field, and laying carpeting. Ok, so it only seems that bad. (lol) We all know that staying clean and presentable costs us much more in pain and fatigue than our healthy counterparts. It's been years since I've been able to take a relaxing soak in the tub, mainly because I can't get in and out of the tub without help. Somehow I don't see my 85 old Mother hoisting me out of the tub. So that leaves me with the shower. You may not think you are "disabled" enough to warrant using a shower chair. However, even if you're able to walk fine and can stand unaided, a shower chair will lengthen your endurance for a relaxed, comfortable shower. Shower chairs can be large or small, and can be bought sturdy enough to hold up to at least 450 pounds. They can be purchased through those health product catalogs we all get in the mail, like Dr. Leonard's catalog, or they can be purchased at your nearby living aids store. I recommend checking out yard sales, flea markets, or Good Will stores first to see if you can get one cheaper. The average retail price for basic shower chairs is around $40.00. Another energy saving idea is a dual shower head that includes a hand-held shower. This way you can stand under the shower spray for all-over rinsing, train the spray on a particular set of muscles that ache, or you can hold the spray while seated and direct it where you need it. These basic dual heads range in cost from $20-30, and are available at your local home improvement or Wal-Mart store. |
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Tips on Finding a Good Wheelchair Accessible Hotel/Motel
Finding a good wheelchair accessible hotel can be a daunting task. With so many places to choose from disabled travelers need a quick way to compare hotels and find the one that can accommodate their special needs. Following the few simple trip planning steps below can make the difference between a great vacation or a frustrating trip for a disabled person.
Narrow Your List of Hotels/Motels -
WhenWeTravel is a web site offering a Wheelchair Accessible Hotel Search to help disabled people narrow the list of hotels to the ones with all their special needs. Travelers can use it to pick a destination and check off all the amenities they require. They currently have a list of over 37,000 wheelchair accessible hotels from destinations all around the world. A disabled traveler can use the hotel search to get a narrow list of hotels to be used for calling the hotel directly. Call The Hotel/Motel Directly and Ask
Some Questions -
Listen "between the lines" -
A disabled traveler should be listening for clues that indicate the hotel has a
good understanding of the difficulties faced by an individual with a disability. If
the reservation desk at the hotel is knowledgeable about ADA requirements such as wheel
chair accessible passages, counter heights, door hardware, bathroom fixtures, and roll
in showers there is a good chance they frequently serve disabled guests. However, be
wary of a hotel manger that seems to promise too much. If the hotel seems too good to
be true...it probably is.
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Sleep
Overcoming insomnia greatly improves FM and CFS/ME symptoms. Did you know that healthy people who volunteered for sleep deprivation experiments actually developed FM-like symptoms! That's why it is so important to try to get as much sleep as possible. One treatment for getting sleep is the use of Melatonin. This medication is now being used for restorative sleep at night with no "hangover" the next day. Melatonin has been called the body's own natural sleeping pill. It plays a key role in the sleep cycle by helping you fall asleep. Low melatonin levels can cause sleep-onset insomnia. For more information about Melatonin, including side effects, warning and precautions, CLICK HERE. Remember: If you use natural products, get them from a reliable source and be sure to inform your doctor of what you're taking. Many supplements, natural products, and vitamins don't interact well with prescription medications! |
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Talk It Over
As human beings, we have a biological need to feel connected to others. Depressed people need the support of other people even more. On your own, it's difficult to maintain perspective and sustain the effort required to succeed in treatment. But when you're depressed, retreating into your shell is more appealing than socializing. The problem is that social isolation fuels depression and makes it even worse. When they're alone, depressed people tend to revert to negative, unrealistic thinking, which only exacerbates feelings of worthlessness, shame, and alienation.
Turn to trusted friends and family members -
Join a support group -
To find a list of online support groups, click here. For a worldwide listing of support groups that meet in-person, click here.
See a therapist -
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