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The following are miscellaneous questions and answers regarding Fibromyalgia (FM)
and Chronic Fatigue Syndrome/Myalgic Encephalopathy (CFS/ME).
Contact us if you have a question you'd
like answered. Select from the table below for more FAQ's.
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Why Can't I Remember Anything?
This is commonly known as "Brain Fog" or "Fibro Fog". It's usually one of the earliest
symptoms that make us realize that something is really wrong with us. We erroneously
think we have early Alzheimer's, brain tumors, or that
we're just crazy.
Brain fog may be described as a state of confusion or lack of clarity. It can feel like a
cloud that reduces your visibility or clarity of mind. It can cause you to become
forgetful, detached and often discouraged and depressed.
Brain fog and/or fibro-fog is very common. It affects thousands of people, children as
well as adults. It contributes to school and work problems, low self-esteem, accidents,
unhappy relationships and even crime and delinquency. Although it is common, it is not a
recognized diagnosis, either in medicine or psychology. Some people have been this way for
most of their life and think this is normal. Brain fog can have many causes - physical,
biochemical, and emotional.
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Can I Donate Blood?
This is what the
American Red Cross says about donating blood if you have a chronic
illness:
"Most chronic illnesses are acceptable as long as you feel well, the condition is under
good control, you have an adequate hemoglobin level and your temperature is normal when
you come to donate, and you meet all other eligibility requirements."
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Why Do I Keep Gaining Weight?
There are a several answers to that question. First, and most obviously, increased pain
and discomfort makes us avoid those activities we previously enjoyed and which helped to
keep the weight off. Secondly, our metabolism is slowing as we age. Thirdly, and perhaps
the most important answer, lies in understanding the role that some of our biochemical
abnormalities.
FM often causes weight gain in individuals due to a number of factors that are both
directly and indirectly related to the disease itself. FM leads to hormonal imbalances,
affecting levels of cortisol,
thyroid,
serotonin and
insulin, as well as the production of
growth hormones. Because of this hormonal imbalance,
metabolism slows down and weight gain often follows. Fatigue associated with FM also leads
to increased weight.
Because FM initiates an arousal disturbance in the brain wave pattern during sleep, the
individual can't get enough quality sleep; the individual can also suffer from
sleep apnea and restless leg syndrome, which increase tiredness. A new study
found that a lack of sleep also leads to higher
hypocretin production, which is important in sleep and
appetite levels. When hypocretin neuron levels are high (due to environmental and mental
stressors), they lead to an increased state of arousal, leading not only to fatigue, but
also to overeating. Drugs taken to treat FM-related depression can also cause the
individual to gain weight. Antidepressants increase
appetite, fluid retention, and can affect hormone levels and therefore metabolism.
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Why Do My Nails Have Ridges?
Your fingernails' health can tell a great deal about your internal health. These
abnormalities of the nails are often the result of nutritional deficiencies or other
underlying conditions. Here are some of the nutritional deficiencies and what they do:
- Hangnails: Lack of protein, folic acid, and Vitamin C
- Brittleness and dryness: Vitamin A and calcium
- Horizontal, vertical ridges, and fragility: B vitamins
- Excessive dryness, rounded and very curved nail ends, darkened nails: B12
- "Spoon" shaped nails and/or vertical ridges: Iron deficiency
- White spots: Zinc deficiency
- Splitting nails: Lack of hydrochloric acid
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Is this Disease Hereditary?
As we become more familiar with the signs and symptoms of this disease, we often begin
seeing that other family members seem to have it, too. Does that means it's hereditary?
Some doctors say that there does seem to be a
predisposition for that. If that is true, then does that mean
there is a gene for this disease being passed down within the family? No one knows yet
because no research is being done on it. There are certainly "clusters" of family members
with this disease. However, there are also clusters in non-related people who happened to
live in the same community or worked in the same place.
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How Many People Get FM/CFS/ME?
Current best estimates indicate that:
- 2% to 4%, or 4 to 8 million Americans have FM/CFS/ME
- 1.5 million people in
Canada have FM/CFS/ME
- In Europe it's estimated that 1 million people have FM/CFS/ME
These figures make FM/CFS/ME the second most common rheumatological illness after
osteoarthritis.
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What Is Homeopathy?
Your body has the ability to heal itself. When you are ill, your body produces symptoms,
which is how we know that the body has recognized that something is wrong and is actively
working to heal itself. This "natural regulator" is your body's auto-regulatory mechanism
and it works to keep your body in balance - or in a state of homeostasis.
Here's an example of how this works. Think of your "natural regulator" as your internal
temperature gauge. If you go outside and it is very hot, your body will recognize it is
too hot and begin to perspire. Your homeostatic mechanism is producing a symptom -
perspiration - in an effort to cool down the body. If you go outside and it is very cold,
the symptom is shivering. Your homeostatic mechanism is trying to warm the body up by
shivering to produce heat.
Think about the last time you were shivering. You could not control it, and you did not
stop until you were warm. It is the same way with homeopathic medicines. If you are ill
and your body is showing symptoms, the symptoms will not disappear until the source of the
symptoms has disappeared.
Homeopathic medicines stimulate your body's homeostatic mechanism so your body heals
itself by dealing with the sources of your symptoms.
Homeopathy is different from conventional medicine because conventional medicine simply
defines health as the lack of symptoms (if you dry up a runny nose, is your cold gone and
are you healthy?). Homeopathy defines health as the lack of disease (if you get rid of the
source of the runny nose in the process of dealing with the source, the runny nose will
disappear on its own.)
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Is Homeopathy Regulated?
Homeopathic medicines are regulated as drugs by inclusion in the Food, Drug and Cosmetic
Act. All homeopathic medicines are required to have NDC (National Drug Codes) listed on
the front panel of the label and box and identify that the products are registered with
the federal government. Homeopathic medicines, like all drugs in the United States, are
also regulated as prescription and non-prescription. If a remedy is regulated as a
prescription item, it is necessary to have a written prescription from a physician to
obtain the remedy.
Drugs in the United States are made according to either the United States Pharmacopoeia
(USP) or the Homeopathic Pharmacopoeia of the United States (HPUS). These Pharmacopoeias
are like cookbooks that contain the procedures for manufacturing drugs in the United
States-, either prescription or non-prescription. You can find most common drugs in the
USP and every homeopathic medicine from Arnica to Zincum in the HPUS.
Because homeopathic medicines are regulated as drugs, in order to prescribe or dispense
homeopathic medicines, you must have a license to prescribe medicine. If somebody makes an
individual decision to use a homeopathic over-the-counter drug for an acute illness, that
is their decision. It is illegal to tell somebody which remedy to take unless you have a
license to prescribe. It is not illegal, however, to guide people towards books and
informational materials that will help them determine which remedy may best match their
symptom picture.
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What Is Naturopathic Medicine?
Naturopathic medicine (also known as naturopathy) is a school of medical philosophy and
practice that seeks to improve health and treat disease chiefly by assisting the body's
innate capacity to recover from illness and injury. Naturopathic practice may include a
broad array of different modalities, including manual therapy, hydrotherapy, herbalism,
acupuncture, counseling, environmental medicine, aroma therapy, nutritional counseling,
homeopathy, and so on. Practitioners tend to emphasize a holistic approach to patient
care. Naturopathy has its origins in the United States, but is today practiced in many
countries around the world in one form or another, where it is subject to different
standards of regulation and levels of acceptance.
Naturopathic practitioners prefer not to use invasive surgery, or most synthetic drugs,
preferring "natural" remedies, i.e. relatively unprocessed or whole medications, such as
herbs and foods. Licensed physicians from accredited schools are trained to use diagnostic
tests such as imaging and blood tests before deciding upon the full course of treatment.
Naturopathic Practitioners also employ the use of prescription medications and surgery
when necessary and refer out to other medical practitioners.
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What Is Acupuncture?
Acupuncture is a technique of inserting and manipulating filiform needles into
"acupuncture points" on the body. According to acupuncture teachings this will restore
health and well-being, and is particularly good at treating pain. The definition and
characterization of these points is standardized by the World Health Organization (WHO).
Acupuncture is thought to have originated in China and is most commonly associated with
Traditional Chinese medicine. Different types of acupuncture (Japanese, Korean, and
classical Chinese acupuncture) are practiced and taught throughout the world.
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What Is Acupressure?
Acupressure is a traditional Chinese medicine technique based on the same ideas as
acupuncture. Acupressure involves placing physical pressure by hand, elbow, or with the
aid of various devices on different acupuncture points on the surface of the body.
Traditional Chinese Medicine does not usually operate within a scientific paradigm but
some practitioners make efforts to bring practices into an evidence-based medicine
framework.
There is no scientific consensus over whether or not evidence supports the efficacy of
acupressure beyond a placebo. Reviews of existing clinical trials have been conducted by
the Cochrane Collaboration and Bandolier according to the protocols of evidence-based
medicine; for most conditions they have concluded a lack of effectiveness or lack of
well-conducted clinical trials.
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What Is Hydrotherapy?
Hydrotherapy, formerly called hydropathy, is probably the oldest form of medical
treatment. It involves the use of water for soothing pains and treating diseases.
Hydrotherapy is used to treat arthritis, burns, spasticity,
ankylosing spondylitis,
musculoskeletal disorders, spinal cord injuries and stroke
patients with paralysis. It is also used to treat orthopedic and
neurological conditions in dogs and horses and to
improve fitness.
Immersion in water - and doing exercises in water - has always been a popular therapy.
Thousands of years of treatments have built an enormous amount of expertise but the
alleged benefits had little supporting evidence from science until approximately 30 years
ago. A 2006 survey of research in Annals of the Rheumatic Diseases discusses the vast
amount of high-quality studies showing the effectiveness of hydrotherapy. A new field of
research focuses on the cost-effectiveness of hydrotherapy vs. other forms of treatment.
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Fibromyalgia & Guaifenesin Therapy
Dr. R. Paul St. Amand
believes that Fibromyalgia (FM) is caused by an abnormality in phosphate excretion, which
may be due to a genetic defect. Retention of phosphates eventually interferes with energy
formation in affected cells.
Guaifenesin (guai) treatment flushes metabolic debris out of the body, and while this
occurs, your pain will probably increase temporarily. His treatment is designed to restore
energy production by releasing the body from a biochemical blockade. He believes that FM
is caused by the retention of a biochemical substance within the cells themselves a
metabolic malfunction that results in an inability to produce energy.
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What's The Difference Between Acute & Chronic Illness?
An Acute illness typically will "run its course"
regardless of whether or not there is drug intervention. Coughs, colds, teething, PMS,
sleeplessness are all examples of such illnesses. Usually, medicines for acute illnesses
are regulated as OTC (over-the-counter) drugs.
A Chronic illness is one that requires medical supervision and is often a disease that has
formed over a long period of time. Examples of chronic illnesses are Cancer, AIDS, Kidney
Disease, Diabetes, Fibromyalgia, Chronic Fatigue Syndrome and Myalgic Encephalopathy.
Usually, medicines for chronic illnesses are regulated as prescription Only.
Homeopathy is often used for treatment
of both acute and chronic illnesses. As with any disease, if a chronic illness is being
treated using homeopathy, medical diagnosis and monitoring is still required.
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What's The Difference Between A Sign and A Symptom
A sign is objective evidence of disease; it is something that can be seen.
A symptom is subjective evidence of disease; it is a feeling.
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What's The Difference Between A Disease and A Syndrome
A disease is a pathological condition of
a body part, an organ, or a system resulting from various causes, such as infection,
genetic defect, or environmental stress, and characterized by an identifiable group of
signs or symptoms.
A syndrome is a group of symptoms that collectively indicate or characterize a
disease, psychological disorder, or other abnormal condition.
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What's The Difference Between FM and CFS/ME
Chronic Fatigue Syndrome/Myalgic Encephalomyelitis
(CFS/ME) and Fibromyalgia (FM) are alike in many ways. In fact, it is not uncommon for
a person to have both FM and CFS/ME. Some experts believe that FM and CFS/ME are in
fact the same disorder, but expressed in slightly different ways. Both CFS/ME and FM
have pain and fatigue as symptoms.
CFS/ME often begins after having flu-like symptoms. But people with CFS do not have the
tender points that people with FM have. CFS/ME is an illness characterized by prolonged
and debilitating fatigue accompanied by a number of other symptoms including:
- Memory and Concentration Problems
- Recurrent Sore Throats
- Unrefreshing Sleep
- Muscle and Joint Pain
- Headaches
To be diagnosed with CFS/ME, a person must have:
- Extreme fatigue for at least 6 months that cannot be explained by medical tests
- Have 4 or more of the following symptoms:
- Forgetting things or having a hard time focusing
- Feeling tired even after sleeping
- Muscle pain or aches
- Pain or aches in joints without swelling or redness
- Feeling discomfort or "out-of-sorts" for more than 24 hours after being active
- Headaches of a new type, pattern, or strength
- Tender lymph nodes in the neck or under the arm
- Sore throat
FM is a malfunction of the central nervous system that causes disordered pain processing,
and results in pain amplification. The main symptoms of FM include:
- Widespread Pain
- Fatigue
- Sleep Disorders
Other symptoms that may occur include:
- Chest Pain
- Persistent Headaches, Migraines
- T.M.J. (temporomandibular joint syndrome)
- Mitral Valve Prolapse
- I.B.S. (irritable bowel syndrome)
- Vision Problems
- Urinary Problems
- Acid Reflux
- Allergies
- Dizziness
- Numbness and Tingling
- Sensitivity to cold or heat
- Depression
- R.L.S. (restless legs syndrome)
- Chemical or Environmental Sensitivities
- Impaired Balance or Coordination
- Problems with Memory, Concentration and Cognitive Functioning
While the two illnesses have a number of similarities, they also have some
distinct differences.
Similarities
- Reduced Cerebral Blood Flow to the Cortex and Midbrain
- HPA (hypothalamic pituitary axis) Suppression
- Reduced Levels of Serotonin
- Non-restorative Sleep
- Reduced Levels of Growth Hormone
- Evidence of a Genetic Component
Although there are many similarities, there are also significant differences.
Differences
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FM is identified by 18 distinct tender points (designated points on the body that are
painful when pressure is applied), while CFS/ME is distinguished by post-exertional
malaise (deep fatigue and exhaustion following physical exertion, which lasts more
than 24 hours).
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Substance P (a neurotransmitter that sends pain signals) is elevated in FM but not
in CFS/ME
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RNaseL (a cellular antiviral enzyme) is frequently elevated in CFS/ME but not in FM
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CFS/ME is often triggered by an infectious or flu-like illness, while FM is
usually triggered by a severe physical or emotional trauma (for example, injury,
illness, surgery, prolonged stress)
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