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Welcome to the May newsletter. We've begun a new series entitle In-Depth Look at
FM Medications. Each month a new medication used in the treatment of
Fibromyalgia will be the topic. Learn everything from how it works, to what the
side effects and drug interactions are. This month the featured medication is
Lyrica®.
If you have specific ideas or topics you'd like to see covered in our newsletter,
click here and we will do our best to address them in the coming months.
Reminder: Don't forget Mom on Mother's Day - May 10! We'd also like to thank
all the American veterans for their invaluable service to our country. Happy
Memorial Day!
On The Lighter Side...
We all know that laughter is the best medicine, for that reason we have added a
new section called On The Lighter Side to each newsletter. We hope it helps
bring a smile to your face!
If you have a clean joke that you'd like to share with our
readers, contact us here.
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Foods That Fight Fibromyalgia & CFS/ME
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While no magic food will prevent every patient's Fibromyalgia (FM) and CFS/ME
flare-ups, a few dietary improvements can make a world of difference and may
alleviate even the most daunting symptoms.
Fibromyalgia Foods to Enjoy:
Raw Foods
Fruits and vegetables are typically low in calories, high in fiber, and rich
in antioxidants and phytochemicals. That's good news for those who are,
respectively, battling obesity, irritable bowel syndrome (IBS), or autoimmune
disorders, all common among FM patients. Plus, natural foods lack the additives that
can aggravate symptoms.
"Preservatives and coloring tend to have a negative effect on a person with
fibromyalgia. Eating more natural foods is very important." Says Lynne Matallana,
founder and president of the National Fibromyalgia Association.
Omega 3's
The "good fat" found in cold-water fish and walnuts is believed to have
anti-inflammatory properties, according to Jeffrey Thompson, MD, an associate professor
of physical medicine and rehabilitation at the Mayo Clinic College of Medicine. And
while omega 3's may not offer pain relief across the board, they're a worthy addition
to any diet: "Just for heart health, it's not a bad idea," Thompson says.
Protein
Reducing your carb intake and packing more protein into your diet can keep
blood-glucose levels from fluctuating, which can trigger fatigue. "One thing we
recommend is the Mediterranean diet, because it helps people avoid those sugar
rushes," Matallana says.
Foods to Avoid:
Caffeine
Fatigue is one of the most common symptoms of FM, but using caffeine as a combatant to
this symptom can actually exacerbate the problem.
"What we tend to do when we get into that exhaustion phase is self-medicate with
caffeine," Matallana says. "You give yourself a boost, but then you have that
drop-off."
Caffeine intake can also trigger headaches and interfere with sleep patterns, which
can further perpetuate fatigue.
Simple Carbohydrates
Like caffeine, sugar and white-flour carbohydrates can provide a temporary surge in
energy followed by a crash. As Thompson explains, FM patients often experience
general hypersensitivity, and that can translate into increased sensitivity to
blood-sugar highs and lows.
Artificial Sweeteners
While reducing sugar intake can be beneficial, you may also want to steer clear of
sweet snacks that use aspartame or saccharine as a sugar replacement.
"Anything that has a chemical basis tends to be hard on people with
fibromyalgia," Matallana says.
That may seem like a double-edged sword, but you can curb sugar cravings by eating
complex carbs or sweet veggies like yams, squash, or carrots.
The benefits of adding or avoiding specific foods are different for everyone, so
keeping a food diary may help you to identify your personal triggers for pain and
also which foods make you feel good. It may be a trial-and-error process, but rest
assured that improving your diet is unlikely to backfire.
"People have to realize that it may not be an overnight fix," Matallana says. "But
by eating healthy, you're working toward a better quality of life because you'll
be healthier overall."
Foods That Fight CFS/ME
The effects of Chronic Fatigue Syndrome/Myalgic Encephalopathy (CFS/ME) can range
from minor nuisances such as headache, muscle aches, joint pain, and sore throat to
major inconveniences such as debilitating fatigue and impaired memory.
While there is no definitive cure for CFS/ME, you can help manage symptoms through
dietary changes.
If you have been diagnosed with CFS/ME, try the following:
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Decrease your protein intake to 10 percent of your daily calories.
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Eat a wide variety of fresh fruits and vegetables.
(preferably organic) for their protective phytochemicals.
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Eat garlic regularly for its antibiotic effects.
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Incorporate immune-enhancing mushrooms (including shiitake, oyster, enokidake and
maitake mushrooms) into meals daily.
There are also nutritional supplements, which may help to relieve some of the
symptoms. The nutritional supplements Potassium-magnesium aspartate, magnesium
carnitite may be of help at relieving some of the symptoms.
Herbs that may help include, Golden Seal (though this should not be taken for more
than six consecutive weeks and then with a six-month break between uses), Echinacea
and garlic will help to boost your immune system. Valerian and Kava kava will help
with insomnia. Ginseng and nettle can help you to build up energy and stimulate
the metabolism. Alfalfa or wheat grass supplements can also supply many minerals
and essential nutrients to help energize the body and boost the immune system.
Important:
Herbal supplements contain biologically active compounds that should not be
considered safe just because they are sold over the counter or come from "natural"
sources such as plants. When trying a new herbal supplement, ask your doctor or
pharmacist whether there are known safety issues associated with the herbal
supplement, especially interactions with other medications. For more about suppliments
and medications click here.
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Source(s):
* Lynne Matallana, founder and president of the National Fibromyalgia Association.
* Jeffrey Thompson, MD, Associate Professor of Physical Mmedicine and Rehabilitation,
Mayo Clinic College of Medicine.
* Andrew Weil, M.D., world-renowned leader and pioneer in the field of
integrative medicine.
* Chronic Fatigue Syndrome and Natural Remedies, SafeAlternativeMedicine.
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Intravenous Lidocaine for Fibromyalgia
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Fibromyalgia (FM) is a disorder characterized by chronic widespread pain. In this
study, we investigated the effect of intravenous infusions of lidocaine in pain
and quality of life of patients with FM.
Twenty-three consecutive patients were included in the study, which consisted on
five sequential intravenous 2% lidocaine infusions with rising dosages (2-5 mg/kg,
days 1-5). Fibromyalgia Impact Questionnaire (FIQ), Health Assessment Questionnaire,
and a visual analog scale (VAS) for pain were applied before the first lidocaine
infusion, immediately after the fifth infusion and 30 days after the fifth infusion.
A significant improvement was observed in the FIQ scores after the fifth infusion
(73.52 +/- 16.56 vs 63.29 +/- 21.21, p = 0.02), which was maintained after 30 days
(73.52 +/- 16.56 vs 63.85 +/- 24.59, p = 0.04). Similar results were seen concerning
the VAS: 8.19 +/- 1.76 vs 6.84 +/- 2.44, p = 0.01 and 8.19 +/- 1.76 vs 7.17 +/- 2.35,
p = 0.05, respectively.
This study shows that intravenous lidocaine infusions are safe and effective in
the management of Fibromyalgia.
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Source(s):
* Schafranski MD, Malucelli T, Machado F, Takeshi H, Kaiber F, Schmidt C,
Harth F., Department of Rheumatology, Santa Casa de Misericórdia, Rua Carlos
Osternack, 111, 84010-120, Ponta Grossa, PR, Brazil, marceloschafranski@yahoo.com.br.,
Intravenous lidocaine for fibromyalgia syndrome: an open trial, Clin Rheumatol.
2009 Mar 5. [Epub ahead of print].
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In-Depth Look at FM Medications - Lyrica
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Last month we did an article on Medications Used to Treat Fibromyalgia.
We thought it might be helpful for you to learn more about these medications.
This month we will take an in-depth look at Lyrica.
Lyrica came out on the market in 2001
as an antiepileptic, analgesic for the treatment of some types of seizures. Lyrica
has also been used for the management of postherpetic neuralgia (nerve pain caused by the
herpes virus or shingles) and for diabetic peripheral neuropathy (pain from damaged
nerves that happen with diabetes).
On June 21, 2007, Lyrica (pregabalin) was approved by the FDA for treatment of
Fibromyalgia (FM). The effectiveness of Lyrica in treating FM was established in
two clinical trials. Lyrica was used for the reduction of FM symptoms, patients showed
significant improvement in pain, sleep, fatigue and quality of life. Lyrica is a
structural derivative of gamma-aminobutyric acid (GABA), an inhibitory
neurotransmitter. Manufactured by Pfizer, Inc.
How LYRICA Is Thought to Work
Although the exact mechanism of action is unknown, results from animal studies suggest
that Lyrica reduces the number of electrical signals that the brain cells send to
each other. This could reduce the amount of pain you feel from FM.
Important Safety Information
In mice, an increase in a specific type of blood vessel tumor was observed but no
evidence of the same effect was seen in studies with rats. The clinical significance
of this finding is unknown. During clinical studies in humans, none of the same tumor
types were observed, although some new or worsening preexisting tumors were reported
(57 patients out of 6,396 patient-years). It is not possible to know whether this is
or is not related to Lyrica treatment.
Before taking this medication, tell your doctor if you have any other medical
conditions including:
- kidney problems
- heart problems
- bleeding problems or a low blood platelet count
- if you are pregnant or plan to become pregnant
- if you are breast-feeding
Tell your doctor, if you have abused prescription medicines, street drugs, or
alcohol in the past.
Tell your doctor about all the medicines you take including prescription
or non-prescription medicines, vitamins or herbal supplements. Lyrica and other
medicines may affect each other. Especially tell your doctor if you take:
- rosiglitazone (Avandia®)
- pioglitazone (Actos®)
- any narcotic pain medicine (such as oxycodone)
- tranquilizers or medicines for anxiety (such as lorazepam)
- any medicines that make you sleepy
Tell your doctor if you plan to father a child. Animal studies showed that Lyrica
made animals less fertile. Also, in animal studies, birth defects occurred in the
offspring of male animals who were treated with Lyrica. It is not known if
these effects would happen in people.
It is not known whether Lyrica will be harmful to an unborn baby. Do not take Lyrica
without first talking to your doctor if you are pregnant or could become pregnant during
treatment. It is not known if Lyrica passes into breast milk and if it can harm your
baby. You and your doctor should decide whether you should take Lyrica or breast-feed,
but not both.
Use caution when driving, operating machinery, or performing other hazardous activities.
Lyrica may cause dizziness or drowsiness. If you experience dizziness or drowsiness, avoid
these activities.
Lyrica will cause drowsiness and fatigue. Avoid alcohol, sleeping pills, antihistamines,
sedatives, and tranquilizers that may also make you drowsy except under the supervision
of your doctor.
How to Take Lyrica
Lyrica is a capsule that may be taken two times each day for FM. The starting dose
is 150 mg/day. Your doctor may increase your dosage up to 450 mg/day.
As with many medicines that come in different doses, your doctor may decide to adjust
your dose. This may help if you are experiencing any side effects or not getting
the results you expect. A lower dose would be required if you have kidney problems.
Your doctor will tell you how often to take Lyrica. The best way to remember to
take Lyrica is to make it part of your daily routine. Think about taking
Lyrica at some of these times:
- With your meals
- Right after you brush your teeth
- When you wake up
- Before you go to sleep
And please be sure to follow these guidelines:
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Lyrica is taken two times a day for Fibromyalgia. Your doctor will tell you how
much Lyrica to take. And when to take it.
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Take Lyrica at the same time every day. If you miss a dose by a few hours, take it
as soon as your remember. If it is close to your next dose, just wait and take your
next dose at the normal time.
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You can take Lyrica with or without food.
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Take Lyrica exactly as prescribed. Your doctor may adjust your dosage of
Lyrica if it doesn't give the desired results. Do not change your dose without
talking to your doctor.
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Keep your doctor up-to-date on your treatment progress.
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Tell your doctor about side effects that bother you or don't go away with time.
Side Effects
Get emergency medical help if you have any of these signs of an allergic reaction:
- skin rash or hives
- difficulty breathing
- swelling of your face, lips, tongue, or throat
You should know that, like other medicines, Lyrica may cause side effects. In
clinical trials, some of the most common side effects of Lyrica were:
- dizziness
- sleepiness
- weight gain
- blurred vision
- dry mouth
- feeling "high"
- swelling of hands and feet
- trouble concentrating
These side effects were often mild to moderate. A small number of patients in
clinical trials stopped taking Lyrica because of the side effects. You should not drive
a car or work with machines until you know how Lyrica affects you.
Lyrica caused skin sores in animals. Although skin sores were not seen in studies
in people, if you have diabetes, you should pay extra attention to your skin while
taking Lyrica and tell your doctor of any sores or skin problems.
Side effects other than those listed here may also occur. Talk to your doctor about
any side effect that seems unusual or that is especially bothersome.
Drug Interactions
Tell your doctor about all the medicines you take including prescription or
non-prescription medicines, vitamins or herbal supplements. Lyrica and other
medicines may affect each other. Especially tell your doctor if you take:
- rosiglitazone (Avandia®)
- pioglitazone (Actos®)
- narcotic pain medicine (such as oxycodone)
- tranquilizers or medicines for anxiety (such as lorazepam)
- medicines that make you sleepy
Drugs other than those listed here may also interact with Lyrica or affect your
condition. This includes vitamins, minerals, herbal products, and drugs prescribed
by other doctors. Do not start using a new medication without telling your doctor.
Conclusion
Is Lyrica right for you? It's a question only you and your doctor can answer. But there
are some things you can do to make sure you have the best conversation possible. Here
are some suggestions:
We hope this article has been helpful. Next month our focus will be on Cymbalta®.
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Source(s):
* Drugs.com, Lyrica.
* Patient Product Information, Treatment for Fibromyalgia, Pfizer Inc.
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Funding Boost for Pediatric CFS/ME
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A new area of ground-breaking research to provide a better understanding of the
cause, treatment and prevention of Chronic Fatigue Syndrome/ME in children has
secured a prestigious fellowship and funding of £730,000. (968,417.00 US dollars)
The National Institute of Health Research has awarded the Clinician Scientist
Fellowship to Dr Esther Crawley, Senior Clinical Lecturer at the Centre for Child
and Adolescent Health at the University of Bristol. This will be the first study
to look at CFS/ME in children in such detail.
CFS/ME is a common childhood condition with potentially serious consequences for
those affected, and is the most common reason for long-term absence from school.
Despite this very little is known about it.
"I want to answer the many unresolved questions about the best ways to treat and
manage the patients for whom I am responsible,"
Said Dr Crawley who is also Consultant Paediatrician at the Royal National Hospital
for Rheumatic Diseases NHS Foundation Trust.
Dr Crawley's research has three parts:
1. Investigate the causes of CFS/ME in children. Dr Crawley will use data from
the University of Bristol's Children of the 90s study to see how many children
in the study had CFS/ME age 13yrs, and what factors predict CFS/ME.
2. Identify effective treatments for CFS/ME. She will examine the outcomes of care
in children diagnosed with CFS/ME in different types of services across England
to understand which are most effective in providing treatment.
3. Develop a school-based early intervention tool to prevent the development of
CFS/ME in children. Dr Crawley will develop and test an education package for
children who are missing school because of fatigue, to see if development of
CFS/ME can be prevented. The economic impact of school absences due to fatigue
will also be measured.
"This research is crucial to help us to understand the risk factors and prevalence
of CFS/ME in children, and to give us an improved understanding of the most effective
ways to treat and prevent the development of this condition," she continued.
Dr Crawley's research has been prompted by her involvement in the development
of the National Institute for Health and Clinical Excellence (NICE) guidance for CFS/ME
She said:
"My experience as a member of the NICE guideline development group for
CFS/ME brought into sharp relief the deficits in the current evidence base."
"We do not know how common CFS/ME is in children, what the risk factors are for
developing CFS/ME, whether CFS/ME can be prevented in children at high risk or
what the best model for treatment is."
"Current models of care for children are based on adult evidence and there is
no information on outcome, treatment or prognosis for children who are severely
affected, or the very young."
"These gaps in knowledge were listed as research priority areas by the
guideline development group, and this research plans to begin to address them."
"Throughout my clinical career I have aimed to base my practice on robust
research evidence. This award provides an ideal opportunity for me to achieve my
long-term goal of transforming the care of children with CFS/ME."
The project will begin in March 2009 and will be carried out over a five year period.
The paediatric CFS/ME service at the Royal National Hospital for Rheumatic Diseases
is the largest regional paediatric CFS/ME clinical service in the UK, and has a
national reputation. The paediatric CFS/ME team treats around 200 new children and
young patients from across the UK and Western Europe each year.
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Source(s):
* Funding boost for research into chronic fatigue syndrome in children, Medical
Research News, News-Medical.Net, Published: Sunday, 1-Mar-2009.
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FM/CFS/ME RESOURCES would like to wish all mothers a very Happy Mother's Day!
Mothering Sunday in the UK and Ireland is on the fourth Sunday of Lent. It
was originally a time when Catholics were supposed to travel to attend Mass in
their "Mother Church" (the regional cathedral) rather than in their local parish. By
the Reformation, it had changed into an occasion for children to visit parents. An
1854 source mentions a couplet: "On 'Mothering Sunday,' above all other/Every child
should dine with its mother.
In the United States Mother's Day was first suggested in 1872 by Julia Ward Howe
(who wrote the words to the Battle hymn of the Republic) as a day dedicated to peace. Ms.
Howe would hold organized Mother's Day meetings in Boston, MA ever year.
In 1907 Ana Jarvis, from Philadelphia, began a campaign to establish a national Mother's
Day. Ms. Jarvis persuaded her mother's church in Grafton, West Virginia to celebrate
Mother's Day on the second anniversary of her mother's death, the 2nd Sunday of May.
By the next year Mother's Day was also celebrated in Philadelphia.
Ms. Jarvis and her supporters began to write to ministers, businessman, and politicians
in their quest to establish a national Mother's Day. It was successful as by 1911 Mother's
Day was celebrated in almost every state. President Woodrow Wilson, in 1914, made the
official announcement proclaiming Mother's Day as a national holiday that was to be held
each year on the 2nd Sunday of May.
While many countries of the world celebrate their own Mother's Day at different
times throughout the year, there are some countries such as Denmark, Finland, Italy,
Turkey, Australia, and Belgium which also celebrate Mother's Day on the second Sunday of
May.
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Source(s):
* Baker, Anne Elizabeth (1854), Glossary of Northamptonshire Words and Phrases,"
J. R. Smith, p. 33.
* The First Anniversary of 'Mother's Day'", The New York Times, June 3, 1874,
p. 8: "'Mother's Day,' which was inaugurated in this city on the 2nd of June, 1872,
by Mrs. Julia Ward Howe, was celebrated last night at Plimpton Hall by a mother's
peace meeting.
* Carbone, Angela (2001), "Hamp sets tribute to Julia Howe; 'Battle Hymn' author
founded Mother's Day." Springfield, Massachusetts Union-News, May 18, 2001,
p. B04: "Today's hearts-and-flowers approach to Mother's Day would have appalled
its founder, famed American poet Julia Ward Howe."
* Julia Ward Howe's Mother's Day for Peace, about.com.
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Survey Results & What They Mean To You - Part 2
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Last month we reported the results for General Statistics. We learned a
great deal about who is taking the FM/CFS/ME Survey.
This month our focus is on the Symptoms Statistics and what they really are.
When you look at the following symptoms grouped together you get the following results:
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90% have:
Inability to Concentrate:
Stress Makes Symptoms Worse:
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82% have:
Headaches:
Inability to Concentrate:
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67% have:
Depression:
Stress Makes Symptoms Worse:
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56% have:
Allergies:
Anxiety:
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However, the numbers look different when you add all the following symptoms:
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50% have:
Depression:
Headaches:
Inability to Concentrate:
Light Headiness:
Memory Loss:
Sleep Problems:
Stress Makes Symptoms Worse:
Trouble Communicating:
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39% have:
Depression:
Headaches:
Inability to Concentrate:
Light Headiness:
Memory Loss:
Sleep Problems:
Stress Makes Symptoms Worse:
Trouble Communicating:
Weight Gain:
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34% have:
Anxiety:
Depression:
Headaches:
Inability to Concentrate:
Memory Loss:
Sleep Problems:
Stress Makes Symptoms Worse:
Trouble Communicating:
Weight Gain:
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26% have:
Allergies:
Anxiety:
Depression:
Headaches:
Inability to Concentrate:
Light Headiness:
Sleep Problems:
Stress Makes Symptoms Worse:
Trouble Communicating:
Weight Gain:
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Source(s):
* FM/CFS/ME RESOURCES, FM/CFS/ME Survey Results.
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Cute, Cuddly, and Sneeze-Inducing - Part 2
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Cats and dogs, America's favorite furry family members, take the blame for most pet
allergies in the United States, where about 10 percent of the population is allergic
to animals.
In this part we'll take a look at other pets, such as horses, guinea pigs, roaches,
rabbits, birds and how they cause allergy flare-ups as well.
Rough Riding With Horse Allergies
Dr. Sublett ranks horse allergies right after cat and dog allergies. Based in
the horse-country state of Kentucky, he often treats jockeys who are allergic to their
horses and who without his help would have to choose a different career. Symptoms
are triggered by allergens in the horses' skin, so grooming a horse can be
especially irritating. Inhaling airborne allergens from the horse can cause a runny nose
and itchy eyes, and direct contact with the animal can produce welts on the hands and
other areas of the skin. Cows, pigs, and other farm animals can also trigger allergies.
Allergies in a Cage: Guinea Pigs, Hamsters, and Gerbils
Guinea pigs, hamsters, and gerbils are less popular as pets than cats and dogs, but they
are just as likely to cause allergies in certain people. Allergenic proteins in the
creatures' urine become airborne when the urine dries, triggering symptoms if inhaled.
The good news, says Leftwich, is that these pets usually don't have free run of the house,
so the allergens stay in or near the cage. The bad news is that their bedding or food
(such as alfalfa or hay) can also trigger allergies.
Insect Pets Cause Allergies, Too
Common cockroaches and dust mites rule the roost when it comes to bugs that trigger
allergies. But even when pests become pets, the allergens remain. The large and
docile Madagascar hissing cockroach, a favorite exotic pet in classrooms and homes,
harbors 14 types of mold in its feces or on its body, according to an Ohio State
University study published in March 2008. People who are allergic to mold should
always wash their hands carefully after handling these creepy creatures.
Allergic to the Easter Bunny?
Rabbits are catlike in their grooming habits, so their fur can be covered with
allergenic proteins contained in their saliva. As with all animal allergies, experts
recommend that you confirm a suspected allergy with testing. It could be dust mites in
the rabbit's hay that are causing a reaction, and not the bunny itself.
Allergies From Feathered Friends
Feathers and droppings are the two causes of allergic reactions to pet birds. Each time
the bird shakes or preens itself, it lets fly bits of dust like feather dander that can
trigger symptoms. People with bird allergies often have to avoid jackets and pillows made
with goose down or feathers. Bird droppings pose a risk not only because they
contain allergenic proteins but also because they can contribute to the growth
of allergy-provoking bacteria, molds, and fungi in a bird's cage.
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Source(s):
* Pet Allergies: Worst Animal Offenders, Everyday Health.
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FM/CFS/ME RESOURCES would like to wish all Americans a very Happy
Memorial Day!
Memorial Day, originally called Decoration Day, is a day of remembrance for those who
have died in our nation's service. Memorial Day was officially proclaimed on May 5, 1868
by General John Logan, national commander of the Grand Army of the Republic. It was
first observed on May 30, 1868, when flowers were placed on the graves of Union
and Confederate soldiers at Arlington National Cemetery.
The first state to officially recognize the holiday was New York in 1873. By 1890 it
was recognized by all of the northern states. The South refused to acknowledge the
day, honoring their dead on separate days until after World War I (when the holiday
changed from honoring just those who died fighting in the Civil War to honoring Americans
who died fighting in any war). It is now celebrated in almost every State on the last
Monday in May. Memorial Day was passed by Congress with the National Holiday Act of
1971 to ensure a three day weekend for Federal holidays. Several southern states have
a separate day for honoring the Confederate war dead: January 19 in Texas, April 26
in Alabama, Florida, Georgia, and Mississippi; May 10 in South Carolina; and June 3
(Jefferson Davis' birthday) in Louisiana and Tennessee.
Traditional observance of Memorial day has diminished over the years. Many Americans
nowadays have forgotten the meaning and traditions of Memorial Day. At many cemeteries,
the graves of the fallen are increasingly ignored and neglected. Most people no
longer remember the proper flag etiquette for the day. While there are towns and cities
that still hold Memorial Day parades, many have not held a parade in decades. Some
people think the day is for honoring any and all dead, and not just those fallen in
service to our country.
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Source(s):
* Memorial Day History, http://www.usmemorialday.org/.
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Living with Fibromyalgia & CFS/ME
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Living with Fibromyalgia (FM) and chronic fatigue syndrome (CFS/ME) is difficult.
These medical conditions can take over every aspect of your life. However, you can,
with effort, learn to manage your symptoms. You may never be able to completely
control them, but successful management can put you back in the driver's seat.
Managing these medical conditions requires emotional coping techniques, life-style
changes and proper nutrition in addition to what your doctors can do for you.
Emotional Coping Techniques
After getting a diagnosis of FM or CFS/ME, it's normal to feel a variety of emotions.
It's important for you to deal with these feelings and to recognize them for what they
are, stages of grief. You'll likely have to grieve for your old life in order to make
the best progress at managing your new one.
In her book On Death and Dying, Elizabeth Kubler-Ross identifies five stages
of grief that a patient goes through after learning of a terminal prognosis. While it's
true that FM and CFS/ME won't kill you, living wih these medical conditions
for the rest of your life can make you feel an overwhelming sense of loss. That's
understandable, because in order to get a handle on these illnesses you likely will
need to make some big changes to your lifestyle. The stages of grief are:
- Denial – A refusal to accept what is happening.
- Anger – Feeling like it's not fair or being angry in general.
- Bargaining – Promising something such as being a better person if the situation
goes away.
- Depression – Giving up, not caring what happens.
- Acceptance – Coming to terms with the situation and being ready to move forward.
Once you've moved through these stages, coping will probably be easier but you still
could have emotional set-backs. If you're unable to progress through the stages of
grief or feel that you could be clinically depressed, be sure to tell your doctor. You
may need to see a counselor to help you through it, and medications may help as
well. Remember that clinical depression often occurs with in conjunction with
these conditions.
You will also need to build a support network, whether it be through friends and family
or support groups in your community or
online. Have someone you can talk to when
things get rough.
FM: Life-Style Changes
Early on, the inconsistency of your symptoms can pose a huge barrier to your
understanding them. It will be helpful to both you and your doctor if you keep a
symptom journal. Make note of what symptoms you're experiencing, whether you
exerted yourself physically before they started or increased, what you've eaten,
your stress level, and how well you've been sleeping. Also look for patterns that
may follow your menstrual cycle. Over time, you may be able to discover that
certain things trigger your flare ups. Common triggers include:
Infection
Be sure to see a doctor if you suspect and infection and get it treated promptly.
Trauma
You're likely to need extra time to recover from physical trauma, such as an injury
or surgery.
Stress
Take steps to reduce your daily stress level and learn how to better deal with the
stress you can't avoid, possibly through relaxation techniques, yoga or tai chi.
Changes in Medication, Diet or Exercise
A consistent schedule is crucial. Be sure to keep exercise low-impact and moderate,
with gradual increases in your exertion level.
Insufficient Sleep
Try to go to bed and wake up at the same time every day. A hot bath in the evening
can help you relax. If you need help with sleep issues, talk to your doctor.
Onset of Allergies
Try to avoid your exposure to known allergens. You may need to talk to your doctor
about what allergy medication is best for you.
The more you can learn about your flare-ups the more you can do to mitigate them. In
some cases, it may be impossible to identify a trigger.
As you become more familiar with your triggers and symptoms, look for beneficial ways
to change your day-to-day life.
Help at Home
You may need to arrange for help with housework and taking care of your children,
whether it's through family and friends or by hiring someone.
Changes at Work
Many people with FM make on-the-job changes, work fewer hours, or switch to jobs that
are easier on them physically and/or mentally. Talk to your supervisor about
your condition and what accommodations you may need.
Moderate Exercise
When you're tired and sore, exercise is probably the last thing on your mind. Experts
say, though, that regular moderate exercise is critical in managing the pain of
FM. Something simple such as a daily walk can help keep joints loose and improve
muscle endurance, both of which can lessen pain.
FM: Nutrition
A poor diet can make your FM symptoms worse, so eating well is key. No dietary
or nutritional approach is universally accepted for FM, but increasing evidence shows
that some nutritional changes might improve your symptoms.
To find out what foods may aggravate your symptoms, you can try an elimination
diet.
Chronic Fatigue Syndrome: Coping Strategies
Effectively managing your CFS/ME symptoms can help you be more functional and improve
the quality of your life. Experts recommend several life-style changes, including:
Reduce Stress
Take steps to reduce your daily stress level and learn how to better deal with the
stress you can't avoid, possibly through relaxation techniques, yoga or tai chi.
Get Enough Sleep
Practice good sleep habits, such as going to bed and getting up at the same time each
day. Limit daytime napping, and allow enough time for sufficient sleep.
Exercise Regularly
Done properly, exercise can improve symptoms. However, you'll need to start slow and
build up gradually. A physical therapist may help you put together a good regimen.
Pace Yourself, But Stay Active
Keep your activity consistent day to day. Avoid the temptation to do extra on your
good days, because that could lead to more bad days. While some people leave their
jobs and quit activities due to CFS/ME, people who stick to moderate, consistent
activity levels tend to feel better than those who are inactive.
Maintain a Healthy Life-Style
This includes eating a balanced diet, limiting caffeine, not smoking, getting plenty
of fluids, getting adequate rest, managing stress and exercising regularly.
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Source(s):
* Regina P. Gilliland, MD, Department of Internal Medicine; Division of Rehab
Medicine, Mobile Infirmary Medical Center "Fibromyalgia".
* Judy Bear, First published in MSN Cancer Forum "Stages".
* 1998-2007 Mayo Foundation for Medical Education and Research (MFMER) "Chronic
Fatigue Syndrome".
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There were three fathers to be in a hospital waiting room, waiting for their babies to
be born.
The first nurse comes out and tells the first father, "Congratulations you're the
father of twins!" He says, "Great! I am the manager for the Minnesota Twins."
The second nurse comes out and tells the second father, "Congratulations you're the
father of triplets”! He says, "That's cool! I work for 3M."
The third father opens the window and jumps out.
The third nurse comes out, and asks, "Where's the third father?"
One of the other fathers said, "Oh he jumped out the window."
The nurse asks, "Why?"
He replied, "He works for Seven Up!"
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Source(s):
* CleanJoke.com, http://www.cleanjoke.com/.
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