FM/CFS/ME RESOURCES - Treatment Survey Results

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TREATMENT SURVEY RESULTS Polls

Very little is known about how FM and CFS/ME works. FM/CFS/ME RESOURCES is working towards solving the FM/CFS/ME puzzle by investigating these diseases in their entirety. My hope is to find a cause, which will point to a cure, thereby eradicating these illnesses completely.

In the Treatment Survey I ask questions such as, How does your treatment plan measure up? Are the medications you're taking seem to be working? And when it is all said and done, how much pain relief do you expect from your combined drug and non-drug treatment regimen? The following are the current results of this survey. Feel free to take this survey if you haven't already.

1. Do You Have CFS/ME, Fibromyalgia (FM) or Both?

CFS/ME Only		7
Fibromyalgia (FM) Only		18
BOTH - Fibromyalgia & CFS/ME		19
Not Diagnosed with Either		3
		47 Answered
		1 Skipped Question

2. Who is Primarily in Charge of Your FM and/or CFS/ME Treatment?

Rheumatologist		9
Physical Medicine and Rehab Specialist (Physiatrist)		2
Pain Specialist		1
Primary Care Physician - Family Doctor		21
Internist		5
Osteopath		0
Chiropractor		1
Nurse Practitioner		3
Neurologist		1
Naturopath		2
Psychologist		0
Doesn't Apply		2
Other		9
		41 Answered
		7 Skipped Questions

3. What Medications Do You Take For Your Fibromyalgia (FM) and/or CFS/ME? (alphabetically by brand name - generics in parenthesis)

Adapin (doxepin)		0
Advil (ibuprofen)		8
Aleve (naproxen)		5
Anafranil (clomipramine)		0
Ativan (lorazepam)		2
Aventyl (nortriptyline)		0
Buspar (buspirone)		1
Butrans Patch (buprenorphine)		3
Carbatrol (carbamazepine)		0
Celebrex (celecoxib)		3
Celexa (citalopram)		0
Cymbalta (duloxetine)		10
Depakote (divalproex)		0
Desyrel (trazodone)		1
Dicloflex (diclofenac)		1
Dilaudid (hydromorphone)		1
Dolophine (methadone)		0
Edronax (reboxetine)		0
Effexor (venlafaxine)		3
Elavil (amitriptyline)		6
Endep (amitriptyline)		2
Flexeril (cyclobenzaprine)		5
Halcion (triazolam)		0
Klonopin (clonazepam)		1
Lamictal (lamotrigine)		2
LDN (low dose Naltrexone)		1
Lexapro (escitalopram)		1
Lortab (acetaminophen & hydrocodone)		5
Ludiomil (maprotiline)		0
Lunesta (eszopiclone)		2
Luvox (fluvoxamine)		1
Lyrica (pregabalin)		8
Mirapex (pramipexole)		1
Nardil (phenelzine)		0
Neurontin (gabapentin)		6
Norpramin (desipramine)		0
OxyContin (oxycodone)		2
Pamelor (nortryptyline)		0
Panadol (paracetamol)		4
Parnate (tranylcypromine)		0
Paxil (paroxetine)		5
Pertofrane (desipramine)		0
Pristiq (desvenlafaxine)		0
Provigil (modafinil)		0
Prozac (fluoxetine)		2
Remeron (mirtazapine		1
Restoril (temazepam)		1
Risperdal (risperidone)		0
Robaxin (methocarbamol)		0
Rozerem (ramelteon)		0
Savella (milnacipran)		2
Serzone (nefazodone)		0
Sinequan (doxepin)		0
Skelaxin (metaxalone)		1
Soma (carisoprodol)		1
Sonata (zaleplon)		0
Surmontil (trimipramine)		0
Tegretol (carbamazepine)		0
Tofranil (imipramine)		0
Topamax (topiramate)		2
Trileptal (oxcarbazepine)		0
Ultram (tramadol)		8
Valium (diazepam)		4
Vanadom (carisoprodol)		0
Vivactil (protriptyline)		0
Wellbutrin (bupropion)		3
Xyrem (sodium oxybate)		0
Zanaflex (tizanidine)		4
Zoloft (sertraline)		1
Other		17
		42 Answered
		6 Skipped Questions

4. How Many Medications (vitamins, herbs, juices, etc., over-the-counter & prescription) Do You Currently Take A Day?

0 - 3 a day		15
4 - 6 a day		11
7 - 10 a day		8
11 or more a day		13
		47 Answered
		1 Skipped Question

5. Cognitive Symptoms in the Last WEEK

Acupuncture		13
Acupressure		7
Anti-Allergy Therapy		6
Antibiotics		5
Antidepressants		28
Antimicrobial Drugs		1
Anxiety or Anxiolytic Agents		13
Autonomic Nervous System Stimulants		3
Biofeedback Techniques		3
Blood-Pressure Medicine		7
Chiropractic Care		13
Counseling		18
Craniosacral Therapy		2
Experimental Protocols		2
Homeopathic Remedies		7
Hormones		5
Hyperbaric Oxygen Therapy		0
Intravenous Micro Nutrient Therapy		1
Lifestyle Alterations		20
Massage Therapy		22
Medications		26
Topical Medications		14
Occupational Therapy		5
Osteopathic Manipulative Medicine		3
Physical Therapy		14
Relaxation Techniques		16
TENS Unit		16
Trigger Point Injections		7
Vitamins, Supplements		29
Other		5
		47 Answered
		1 Skipped Question

6. How Much Symptom Relief Are You Receiving From Your Combined Drug and Non-Drug Treatments?

0 - 19%		13
20- 40%		16
41 - 60%		12
61 - 80%		3
81- 100%		2
Doesn't Apply		2
		48 Answered
		0 Skipped Question

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