FM/CFS/ME RESOURCES - Treatment Survey Results

 

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Very little is known about how FM and CFS/ME works. FM/CFS/ME RESOURCES is working towards solving the FM/CFS/ME puzzle by investigating these diseases in their entirety. My hope is to find a cause, which will point to a cure, thereby eradicating these illnesses completely.

In the Treatment Survey I ask questions such as, How does your treatment plan measure up? Are the medications you're taking seem to be working? And when it is all said and done, how much pain relief do you expect from your combined drug and non-drug treatment regimen? The following are the current results of this survey. Feel free to take this survey if you haven't already.


1. Do You Have CFS/ME, Fibromyalgia (FM) or Both?
CFS/ME Only 7
Fibromyalgia (FM) Only 27
BOTH - Fibromyalgia & CFS/ME 24
Not Diagnosed with Either 4

2. Who is Primarily in Charge of Your FM and/or CFS/ME Treatment?
Chiropractor 1
Doesn't Apply 2
Endocrinologist 1
Family Doctor - GP - Primary Care Physician 31
Immunologist 1
Internist - Internal Medicine 5
Naturopath 2
Neurologist 4
Nurse Practitioner 4
Osteopath 0
Pain Management Specialist 1
Physician's Assistant 1
Physical Medicine & Rehabilitation (Physiatrist) 2
Psychologist 0
Rheumatologist 12
Other 14

3. What Medications Do You Take For Your Fibromyalgia (FM) and/or CFS/ME? (alphabetically by brand name - generics in parenthesis)

Adapin (doxepin) 0
Advil (ibuprofen) 8
Aleve (naproxen) 5
Anafranil (clomipramine) 0
Ativan (lorazepam) 2
Aventyl (nortriptyline) 0
Buspar (buspirone) 1
Butrans Patch (buprenorphine) 3
Carbatrol (carbamazepine) 0
Celebrex (celecoxib) 3
Celexa (citalopram) 0
Cymbalta (duloxetine) 14
Depakote (divalproex) 0
Desyrel (trazodone) 1
Dicloflex (diclofenac) 1
Dilaudid (hydromorphone) 1
Dolophine (methadone) 0
Edronax (reboxetine) 0
Effexor (venlafaxine) 6
Elavil (amitriptyline) 8
Endep (amitriptyline) 2
Flexeril (cyclobenzaprine) 6
Halcion (triazolam) 0
Klonopin (clonazepam) 3
Lamictal (lamotrigine) 2
LDN (low dose Naltrexone) 1
Lexapro (escitalopram) 1
Lortab (acetaminophen & hydrocodone) 5
Ludiomil (maprotiline) 0
Lunesta (eszopiclone) 2
Luvox (fluvoxamine) 1
Lyrica (pregabalin) 11
Mirapex (pramipexole) 1
Nardil (phenelzine) 0
Neurontin (gabapentin) 9
Norpramin (desipramine) 0
OxyContin (oxycodone) 4
Pamelor (nortryptyline) 0
Panadol (paracetamol) 4
Parnate (tranylcypromine) 0
Paxil (paroxetine) 5
Pertofrane (desipramine) 0
Pristiq (desvenlafaxine) 0
Provigil (modafinil) 1
Prozac (fluoxetine) 2
Remeron (mirtazapine 1
Restoril (temazepam) 1
Risperdal (risperidone) 0
Robaxin (methocarbamol) 0
Rozerem (ramelteon) 0
Savella (milnacipran) 2
Serzone (nefazodone) 0
Sinequan (doxepin) 0
Skelaxin (metaxalone) 1
Soma (carisoprodol) 1
Sonata (zaleplon) 0
Surmontil (trimipramine) 0
Tegretol (carbamazepine) 0
Tofranil (imipramine) 0
Topamax (topiramate) 3
Trileptal (oxcarbazepine) 0
Ultram (tramadol) 10
Valium (diazepam) 4
Vanadom (carisoprodol) 0
Vivactil (protriptyline) 0
Wellbutrin (bupropion) 3
Xyrem (sodium oxybate) 0
Zanaflex (tizanidine) 4
Zoloft (sertraline) 4
Other 27

4. How Many Medications (vitamins, herbs, juices, etc., over-the-counter & prescription) Do You Currently Take A Day?
0 - 3 a day 16
4 - 6 a day 16
7 - 10 a day 14
11 or more a day 17

5. What Types of Treatments Are You Using (or have used) For Your FM and/or CFS/ME?
Acupuncture 16
Acupressure 7
Anti-Allergy Therapy 6
Antibiotics 5
Antidepressants 33
Antimicrobial Drugs 2
Anxiety or Anxiolytic Agents 18
Autonomic Nervous System Stimulants 3
Biofeedback Techniques 3
Blood-Pressure Medicine 8
Chiropractic Care 15
Counseling 22
Craniosacral Therapy 2
Experimental Protocols 2
Homeopathic Remedies 12
Hormones 6
Hyperbaric Oxygen Therapy 0
Intravenous Micro Nutrient Therapy 1
Lifestyle Alterations 26
Massage Therapy 24
Medications 32
Topical Medications 17
Occupational Therapy 6
Osteopathic Manipulative Medicine 5
Physical Therapy 16
Relaxation Techniques 21
TENS Unit 19
Trigger Point Injections 10
Vitamins, Supplements 39
Other 7

6. How Much Symptom Relief Are You Receiving From Your Combined Drug and Non-Drug Treatments?
0 - 19% 18
20 - 40% 23
41 - 60% 14
61 - 80% 4
81 - 100% 2
Doesn't Apply 3
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